Tag: care-giving

This Is Your Comfort Zone

The golden rectangle reads: “This Is Your Comfort Zone,” according to an article I skimmed about a TV show I will probably never see. The entire second season promises to exist outside said comfort zone. Presumably a devil-may-care attitude about drugs, illicit romance, sexual identity, and stalking is enough to guarantee a second season.

Rabbi Mark Weider

Rabbi Mark Weider

This is not to say that I have not watched some fairly gritty TV shows, including some where I have felt emotionally invested with characters doing some despicable things (Breaking Bad, anyone?). Perhaps this is a way to expand my comfort zone vicariously.

I thought of many ways I could write about comfort zones; about how Jewish and family values play into decisions we make; about the role of self-discipline in our lives, and on and on, but the way the issue struck me was about how caring for our elders can consistently pull us out of our comfort zones.

For some of us, dealing with bureaucracies is uncomfortable: Social Security, Medicare, and Medicaid forms, with their attendant rules and regulations, can drive us to distraction. For others, searching for proper venues for care is a huge stressor. And many of us in the so-called sandwich generation need to exit our comfort zones not only in caring for elders, but for ourselves and children and/or grandchildren.

We may have the financial resources to bring outside help to bear on our problems. There are attorneys who can help get our ducks in the row to get a partner or parent into a nursing home, financial advisors who can guide us in preparing for a range of contingencies, etc. We might find a plausible answer to a question, or begin to plot a seemingly sensible path to action through browsing the internet. Even with this ammunition at hand we may feel we’re up the proverbial creek without a paddle.

Often it helps to have others to commiserate with, especially if family members or friends don’t want to hear our tsouris (troubles) any more. For example, we have a monthly caregivers’ support group at River Garden, and local hospitals have programs for those dealing with Alzheimer’s Disease.

It occurs to me that the differences between these two types of comfort zones, whether those having to do with morality or those involving decisions based on emerging needs has to do with our attitudes. What’s problematic for me (“stupid paperwork…”) may not be problematic for you; what’s problematic for you, I may take in stride.

Attitudes, however, are subject to change. Without necessarily wearing our hearts on our sleeves, we can be more transparent about what’s going on in our lives. We can share our situations, and examine what we’re doing to get beyond our challenges (it may be too much for now to look at them as opportunities!). We can ask for help. And sometimes we may need to accept things just as they are, for now.

And just as importantly, even if we have a boatload of personal needs, we still can be of help to others. As Hillel was accustomed to say (Pirke Avot, 1:14), “If I am not for myself who will be for me? Yet, if I am for myself only, what am I? And if not now, when?” We must be strong advocates for ourselves and our loved ones, reach out to help others, and perhaps most importantly, take action.

At times I feel stalled, and take a while to take action. And I’ve often wondered afterward, filled with relief, what took me so long. I will continue to work on that. Whatever it is you need to work on, chazak, chazak, v’nitchazeik. May we learn to be strong, increase our strength, and strengthen each other.

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Down the Slide

A silly moment, puzzling at the time. “I never put peas in stew.” I scratched my head. I’d been eating my mother’s stew all my life, and knew the recipe…beef, onions, carrots, potatoes, peas, etc. I tried to refresh my mom’s memory. She thought about it, finally conceding, “I guess you’re right.” And I gave it no more thought until a few weeks later, when she made stew, and lo and behold, no peas.

Rabbi Mark Weider

Rabbi Mark Weider

In the larger scheme of things, a lack of peas is not a tragedy. And certainly, it didn’t rate nearly as high up on the scale of cooking mishaps as the time my mother gave out a cake recipe to my aunt, inadvertently mixing up the salt and sugar measurements. I won’t reproduce my aunt’s “salty” remarks here.

The lack of peas was my first time noticing a decline in my mother’s memory. When I got over the frustration of being told something I knew wasn’t true, it could be somewhat humorous. When my mom told me she had never owned a cell phone, I remembered the extensive discussions with her about how she had to keep the phone charged—that sitting in the glove box of her car it wouldn’t stay usable if, God forbid, something happened.

It’s somewhat probable that mom never actually used her cell phone. But it would have been helpful for the times she got turned around enroute somewhere. Her sense of direction had never been good; senility had nothing to do with it. “I was coming home from A.’s, and you’ll never guess where I wound up.” “At the airport?” “HOW DID YOU KNOW THAT!!!” “Well, mom, if you don’t turn onto I271, that’s where you wind up.” “Oh.”

All the family members of residents with dementia I work with have stories to tell about how their loved ones have changed. In some cases it is facts that are missing, situations forgotten, medicine not taken properly, plans not remembered. In other cases, it might be an inability to form a new memory, a lack of impulse control, or a change in personality.

How we react as our loved ones decline varies greatly. My cousin A. (whose home my mother had trouble returning from) continued to get angry at mom. She would yell, and my mother would get frightened and confused. Luckily that would pass. A.’s continued lament was, “I want my aunt back.” Except in rare cases of pharmacologically-induced mental changes, dementia doesn’t clear up.

Most certainly there are good days and bad days, even good and bad times of day. There can be visits where we see the old sparkle in the eyes, or where we really reach someone through music or art, or perhaps a fragrance. The downhill slope may be very slow or quite rapid. There can be plateaus that seem endless. And there are times that someone who has been “out of it” for quite a time suddenly scores very high on a mini-mental exam. I know that I’ve done my share of praying for the good days of a lot of people.

Accepting the sense of loss when our loved ones change is not easy, especially when a spouse or partner is no longer the same. How do we go from having someone with whom to share hopes and dreams, travel, a physical, sexual, and spiritual relationship, to someone who requires caretaking.

While most of us come to terms with what must be done, whether it means taking away driving privileges, wresting control over the finances, obtaining adult day care or home health care, others remain in denial, sometimes to the point of endangering themselves, their loved ones, and others. There are times when nothing more can be said, where we can only pray for others to find their way. The time when we must cede control to God. This prayer has the potential to liberate and empower us.

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Jewish Sacred Aging Podcast #6: A conversation with Rabbi Douglas Kohn about Judaism, Cancer, Alzheimer’s

Rabbi Douglas Kohn, Congregation Emanu El, Redlands, CA

In this program, Podcast #6 in our series, Rabbi Address chats with Rabbi Douglas Kohn of Congregation Emanu El, Redlands, CA about his two books, Life, Faith, and Cancer, about his own battle with cancer, and his newest book, Broken Fragments, which offers a Jewish perspective on Alzheimer’s Disease.

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Broken Fragments (Paperback)

By (author) Douglas J. Kohn

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Jewish Sacred Aging Podcast #5: Progressive Judaism in Latin America, a conversation with Berta Zylberstajn

World Union for Progressive Judaism - Latin America - logoRabbi Address has just returned from participation in the 4th Conference of Jewish Communities in Buenos Aires, Argentina, sponsored by the World Union for Progressive Judaism – Latin America WUPJ-LA). The World Union for Progressive Judaism is the international umbrella organization of the Reform, Liberal, Progressive and Reconstructionist movements, serving 1,200 congregations with 1.8 million members in more than 45 countries.

Berta Zylberstajn, executive secretary, World Union for Progressive Judaism - Latin America

Berta Zylberstajn, executive secretary, World Union for Progressive Judaism – Latin America

While he was in Buenos Aires, Rabbi Address recorded this interview with Berta Zylberstajn, executive secretary of the WUPJ-LA, about the important role Progressive Judaism is playing the spiritual life of Latin American Jewish communities.

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Jewish Sacred Aging Podcast #4: Growing Older: A Sacred Journey: A Conversation with Rabbi Dayle Friedman

Rabbi Dayle Friedman

In the fourth Jewish Sacred Aging podcast, Rabbi Address discusses “Growing Older: A Sacred Journey,” with Rabbi Dayle Friedman, a pioneer in forging a Jewish spiritual response to the challenges and blessings of later life. Rabbi Friedman is the moderator of the web resource GrowingOlder.co (the “.co” domain is correct — not the usual “.com.”)

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Jewish Sacred Aging Podcast #3: Navigating the Doctor-Patient Relationship, a conversation with Dr. Donald Friedman

Donald M. Friedman, MD

In the third Jewish Sacred Aging podcast, Rabbi Address has a conversation with JSA contributor Dr. Donald Friedman about his journey from medical practitioner to the intersection of spirituality and health that he discusses in his JSA blog posts.

Visit www.jewishsacredaging.com for future episodes in this podcast series.

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Jewish Sacred Aging Podcast #2: Three Program Ideas for Congregations and Baby Boomers

In the second Jewish Sacred Aging seminar podcast, we offer Rabbi Address’ recent workshop, “Three Program Ideas for Congregations and Baby Boomers,” presented this month at the regional Shabbaton  of the Union for Reform Judaism.

Visit www.jewishsacredaging.com for future episodes in this podcast series.

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Jewish Sacred Aging Podcast #1: Seminar on “The Art of Care-Giving”

We’re pleased to present our first Jewish Sacred Aging seminar podcast, featuring a workshop conducted by Rabbi Address at M’kor Shalom in Cherry Hill, NJ on “The Art of Care-Giving.” This program is part of the synagogue’s Health and Wellness Initiative, which is based on the care-giving chapter in Rabbi Address’s newest book, Seekers of Meaning. (Click on the book’s title to purchase.)

Visit www.jewishsacredaging.com for future episodes in this podcast series.

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The Community of Care

Just off the red-eye from Seattle, Washington. A beautiful city with wonderful people. I was in Seattle for some of my Union for Reform Judaism work on our project on aging and baby  boomers and spent Sunday with the Jewish Family Service speaking at a gathering that explored the “art” of care-giving. Several dozens of people gathered on a 70 degrees sunny day to talk and share issues and stories about their own journeys and how Jewish texts could provide a guide for this experience. It is truly amazing that this session brings out such powerful emotions amongst the attendees. Everyone has  a story and each story, while similar, is unique. Read more

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